When Support Systems Don’t Grow Alongside People

Cerebral Palsy Family Forum as a panel speaker alongside advocates, self-advocates, and organizations supporting individuals with cerebral palsy and their families across the lifespan. The theme, “CP Grows Up!”, centered on a reality many communities know well: support needs evolve, yet systems do not always evolve alongside them.

The conversation explored navigating fragmented systems, strengthening community, and sharing resources that help make support feel less isolating.

I shared examples of how families, advocates, and communities can turn repeated barriers into collective action, drawing on efforts that contributed to Los Angeles County’s first cerebral palsy motion, the LAUSD World CP Day resolution, and increased visibility of cerebral palsy across public systems. These experiences continue to reinforce a belief that systems become stronger when community voice, persistence, and partnerships help shape them.

Grateful to the organizers, fellow panelists, and keynote speaker Dr. Mark D. Peterson for creating space for conversations across healthcare, advocacy, and community support.

As conversations continue around healthcare, education, employment, and adulthood, perhaps one reminder matters most:

People should spend less time navigating disconnected systems and more time accessing support, information, and community.